1. Discuss the underlying assumptions and potential ramifications of having proxy subjective health status or evaluation measures for children or those unable to speak for themselves.
1. Discuss the underlying assumptions and potential ramifications of having proxy subjective health status or evaluation measures for children or those unable to speak for themselves.Please include 400 words in your initial post with two scholarly articles by Wednesday midnight and 200 words in two answers to your peers by Saturday midnight.
And respond to two peers;Daniela Gonzalez Camejo – Sunday, January 21, 2024, 6:59 AM
Number of replies: 6
Discussion Week 14
Hello class,Proxy subjective health status or evaluation measures for children or individuals unable to speak for themselves are rooted in the assumption that those acting as proxies can accurately represent the subjective experiences and well-being of the individual in question. The reliance on proxies, often parents, guardians, or caregivers, is based on the belief that these individuals have a deep understanding of the individual’s health status and can effectively communicate this information to healthcare professionals (Zini & Banfi, 2021). This assumption is grounded in the notion that those closest to the individual possess unique insights into their daily experiences, symptoms, and overall well-being. However, it is essential to critically examine the potential ramifications and challenges associated with this reliance on proxies in healthcare decision-making. One underlying assumption is the reliability of proxies in accurately assessing and reporting the subjective health status of the individual. While proxies may have intimate knowledge of the individual, their interpretations may be influenced by personal perspectives, biases, or subjective judgments. The proxy’s understanding of the individual’s experience may not perfectly align with the nuanced nature of the individual’s subjective well-being, potentially leading to misinterpretations or omissions in the reported information.
Communication accuracy is another assumption inherent in relying on proxies. The belief is that proxies can effectively convey the individual’s symptoms, feelings, or experiences to healthcare professionals. However, challenges may arise in the communication process, particularly when proxies attempt to articulate subjective experiences that may be difficult to express or comprehend fully. Miscommunication or incomplete information may impact the accuracy of diagnosis and subsequent treatment decisions. Assuming consistency of values between the proxy and the individual is another critical aspect. The proxy is often presumed to share similar values and priorities regarding health and well-being. Nevertheless, differences in values may lead to decisions that do not fully align with the individual’s preferences, potentially affecting the quality and appropriateness of care. Cultural and social factors play a significant role in shaping values, and mismatches between the proxy’s background and that of the individual may result in varying interpretations of subjective health status (Halder et al., 2020). The potential ramifications of relying on proxies extend to issues of autonomy and self-determination. Older children or adolescents, for example, may have distinct preferences that may not be fully captured by their proxies. The proxy’s interpretations may inadvertently infringe upon the autonomy of the individual, raising ethical concerns about the representation of their wishes in healthcare decisions.
References
Halder, P., Hansen, E. N., Kangas, J., & Laukkanen, T. (2020). How national culture and ethics matter in consumers’ green consumption values. Journal of Cleaner Production, 265, 121754. https://doi.org/10.1016/j.jclepro.2020.121754
Zini, M. L., & Banfi, G. (2021). A narrative literature review of bias in collecting patient reported outcomes measures (PROMs). International Journal of Environmental Research and Public Health, 18(23), 12445. https://doi.org/10.3390/ijerph18312445
Yanely Illas Figueroa – Tuesday, February 13, 2024, 1:01 PM
Number of replies: 4
Healthcare suppliers, specialists, and analysts utilize intermediary subjective well-being status or evaluation measures to assess the well-being of children and those who cannot talk for themselves. Intermediary measures require impressive assessment due to their suspicions and conceivable results.
To begin with, intermediary subjective well-being status requires that the intermediary (more often than not a parent, gatekeeper, or caregiver) can suitably assess and report the individual’s well-being status or subjective encounters (Khanna et al., 2022). This suspicion depends on the proxy’s observational capacities, comprehension of the patient’s condition, and communication with healthcare suppliers. Intermediaries may not completely get a handle on the individual’s encounters, particularly if communication is troublesome or the infection is complicated.
Intermediary estimations too assume the proxy’s wellbeing evaluations are fair-minded and exact. In any case, proxies’ conclusions, feelings, and encounters may influence their reports (Lopez et al., 2023). A caregiver’s uneasiness or infection history may cause them to exaggerate or think little of a child’s side effects. Additionally, Intermediary subjective well-being estimations assume the intermediary will be legitimate and serve the individual’s best interface. To dodge restorative judgment or meet social desires, intermediaries may feel compelled to depict the individual’s well-being in a particular way. This might cause underreporting or overreporting of indications, jeopardizing care and treatment comes about.
Intermediary strategies can make independence and educated assent issues. Abraham et al (2022) derive that Proxy measures may limit healthcare decision-making and backing for those who cannot pass on their encounters. It’s pivotal to teach and enable intermediaries to battle for the individual’s best interface while protecting their right to self-determination.
Intermediary subjective well-being estimations are critical in healthcare, particularly in pediatric and geriatric bunches with communication issues, despite these presumptions and conceivable results. Hornsby et al (2022) point out that they offer assistance specialists to analyze, treat, and organize care by uncovering the patient’s well-being. Intermediary strategies have limits, in this way activities to diminish partiality, advance straightforwardness, and ensure the rights and respect of the spoken to must be executed. Utilize various sources of data, empower intermediaries and healthcare experts to communicate, and advance collaborative decision-making wherever attainable. Doing so permits us to convey the most excellent care for the voiceless.
References
Abraham, S., Edginton, E., Cottrell, D., & Tubeuf, S. (2022). Measuring health-related quality of life measures in children: lessons from a pilot study. Research in Psychotherapy: Psychopathology, Process, and Outcome, 25(1). https://doi.org/10.4081%2Fripppo.2022.581
Hornsby, B. W., Camarata, S., Cho, S. J., Davis, H., McGarrigle, R., & Bess, F. H. (2022). Development and evaluation of pediatric versions of the vanderbilt fatigue scale for children with hearing loss. Journal of Speech, Language, and Hearing Research, 65(6), 2343-2363. https://doi.org/10.1016/j.ssresearch.2021.102538
Khanna, D., Khadka, J., Mpundu-Kaambwa, C., Lay, K., Russo, R., & Ratcliffe, J. (2022). Are we agreed? Self-versus proxy-reporting of pediatric health-related quality of life (HRQoL) using generic preference-based measures: a systematic review and meta-analysis. Pharmacoeconomics, 40(11), 1043-1067.
Lopez, A., Tinella, L., Caffò, A., & Bosco, A. (2023). Measuring the reliability of proxy respondents in behavioral assessments: an open question. Aging Clinical and Experimental Research, 35(10), 2173-2190. https://doi.org/10.1007/s40520-023-02501-z
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