Impact of disease on family members
NSG 4055 Week 2 Discussion
Discussion Question
Click here to read the following article from the South University Online Library on the impact of disease on family members:
Golics, C.J., Basra, M.K.A., Finlay, A.Y., & Salek, S.(2013).The impact of disease on family members: A critical aspect of medical care.Journal of the Royal Society of Medicine, 106(10), 399–407.
After reviewing the article, which factor do you feel has the most impact on family members? Please support your response with examples from readings.What are some of the reasons it is important to include the support persons in the plan of care?
The impact of disease on family members: a critical aspect of medical care.
Images
Chart Chart Color Photograph Chart Chart
Authors:
Golics, Catherine Jane1
Basra, Mohammad Khurshid Azam2
Finlay, Andrew Yule2
Salek, Sam
Source:
Journal of the Royal Society of Medicine.Oct2013, Vol.106 Issue 10, p399-407.9p.1 Color Photograph, 4 Charts.
Document Type:
Article
Abstract:
Most existing health-related quality of life research concerns the impact of disease on patients.However, in several medical specialties including dermatology, oncology, and physical and mental disability, studies have been carried out investigating the impact of disease on the lives of families of patients.The aim of this paper is to review the literature which relates to the impact of disease on family members of patients.The OVIDSP Medline was selected as the primary database, Searches were limited to sources published in English.158 papers were identified for review.The definition of “family” varied across the literature, and a broad definition was accepted in this review.This review shows that a wide variety of aspects of family members’ lives can be affected, including emotional, financial, family relationships, education and work, leisure time, and social activities.Many of these themes are linked to one another, with themes including financial impact and social impact being linked to emotional impact.Some positive aspects were also identified from the literature, including family relationships growing stronger.Several instruments exist to measure the impact of illness on the family, and most are disease or specialty- specific.The impact of disease on families of patients is often unrecognised and underestimated.Taking into account the quality of life of families as well as patients can offer the clinician a unique insight into issues such as family relationships and the effect of treatment decisions on the patient’s close social group of partner and family.[ABSTRACT FROM PUBLISHER]
Copyright of Journal of the Royal Society of Medicine is the property of Sage Publications, Ltd.and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder’s express written permission.However, users may print, download, or email articles for individual use.This abstract may be abridged.No warranty is given about the accuracy of the copy.Users should refer to the original published version of the material for the full abstract.(Copyright applies to all Abstracts.)
Author Affiliations:
1 Center for Socioeconomic Research, School of Pharmacy and Pharmaceutical Sciences, Cardiff University, King Edward VII Avenue, Cardiff, CF10 3NB, UK, Department of Dermatology and Wound Healing, School of Medicine, Cardiff University, Cardiff, CF14 4XW, UK [email protected]
2 Department of Dermatology and Wound Healing, School of Medicine, Cardiff University, Cardiff, CF14 4XW, UK
ADDITIONAL DETAILS
Impact of disease on family members
Introduction
There is always a lot of uncertainty when someone with a disease or disability comes home. It can be very difficult to know what to say, how to act and what your role is in helping the family deal with their new situation.
Impact on family members
As you may know, disease can affect many people in your family. It affects them physically and emotionally, so it’s important to understand how this impacts your relationships with others.
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Siblings: If one sibling has a disease that affects their health or well-being, it can have a big impact on their relationships with other people in the family—especially if they’re close friends or siblings who share similar interests or activities together.
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Children of someone with a disease: Children who live with someone who has an illness often feel stressed out by all of the attention they get because everyone wants them to help care for their parent(s). And even though these children want to do everything possible for their parents (and don’t want them to worry too much), sometimes this stress makes things harder than they need be!
Impact on siblings
It’s important to remember that siblings of children with a disease often feel like they don’t know what to say or do for the best. They may be worried about saying the wrong thing or doing something that upsets their sibling.
Here are some tips on how you can help your sibling cope:
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Be open and honest about your feelings and experiences with the disease. If you’re having trouble talking about it, ask an adult for guidance so they can help guide you through this difficult time in your life.
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Be supportive when it comes time for treatment or other health care decisions for your sibling (e.g., blood transfusion). This will reassure them that their family loves them unconditionally despite whatever challenges come along during recovery from cancer treatment
Impact on children of someone with a disease
You might be wondering how the disease will affect your children. The good news is that the impact of a disease on a child can vary from one person to another. Some families have children who get sick and need to stay home from school, while others continue with their normal activities or even take on more responsibility for their siblings’ care.
If your child has been diagnosed with an illness, it’s important to talk with them about how they feel and what they think about being sick. If you’re worried about how this may affect them emotionally and physically, talk with their doctor or another medical professional experienced in treating kids’ illnesses if needed.
Takeaway:
Takeaway:
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You’re in for a long haul.
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Your family members may have to help out with daily tasks, like bathing and cooking.
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There’s no need to make your loved one feel worse than they already do by making them feel bad about themselves or their situation.
Conclusion
This is a very complex issue, but it’s important to remember that the impact of disease on family members can be just as difficult for the person with the disease themselves. It may be hard for someone with a chronic illness to see past their own pain and suffering, but if they do, then it might take some time before their loved ones understand what they are going through.
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