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May 9, 2024

Aryan is a 17-year-old male with Duchenne muscular dystrophy (DMD) who lives with his mother, father

Aryan is a 17-year-old male with Duchenne muscular dystrophy (DMD) who lives with his mother, father, and 14-year-old sister. Aryan’s DMD is progressing, and he was recently hospitalized for pneumonia. At discharge, home hospice services were initiated due to Aryan’s advanced DMD with cardiomyopathy and pneumonia complications. Aryan’s family has had to reduce the recommended services out of financial constraints, and they are struggling with the terminal nature of his disease. Explain how the behavior of healthcare rationing will impact quality of care and outcome for Aryan.

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