The Risks of Collecting Data on Human Populations: Privacy, Security, and Ethics in Population Health Informatics
The Risks of Collecting Data on Human Populations: Privacy, Security, and Ethics in Population Health Informatics
Identity theft is responsible for the loss of billions of dollars every year (Siciliano, 2017). Most people are familiar with overt types of identity theft, such as financial, criminal, and Social Security. In the healthcare field, medical identity theft occurs when someone uses identifying information such as insurance information to obtain healthcare goods and services (World Privacy Forum, n.d.). These types of privacy and security breaches are typically premeditated and conducted with criminal intent. In healthcare organizations, however, the very same technology that provides so many benefits in terms of information sharing and storage of data can pose high privacy, security, and ethical risks to healthcare professionals with even the best of intentions. This is why it is so important to be familiar with risks in these areas as well as strategies to prevent breaches of sensitive health information. One such strategy is to follow ethical principles as outlined by such organizations as the National Institutes of Health and understand when and how violations have occurred. Another way to take a proactive stance to protecting sensitive data is to practice Privacy by Design, or Pb.D.
References:
Stroup, J. (2017). The many types of identity theft. Retrieved from https://www.thebalance.com/the-8-types-of-identity-theft-1947176
World Privacy Forum. (n.d.). Medical identity theft. Retrieved from https://www.worldprivacyforum.org/category/med-id-theft/
For this Discussion:
To Prepare:
Read the Resources for this week, focusing on the Guiding Principles for Ethical Research (NIH, 2016) and Chapter 13 of the textbook (Joshi et al., pp. 335–360, especially pp. 338–339).
Watch the media, Protecting Patient Data, Parts I & 2 (Laureate Education, 2012) Consider the differences between the two in terms of how individuals handled the ethics of the situation. Also view Privacy, Security, and Ethics (Laureate Education, 2018) and consider common issues health professionals face in the field. Consider how such factors as sensitivity and volume of data might cause privacy, security, and ethical issues.
Next, reflect on the case study titled The Privacy, Security, and Ethical Risks of Collecting Data on Populations: Case Study. Consider the similarities and differences between the three scenarios.
What were some of the motivations behind the stakeholders’ actions?
What were some of the constraints related to obtaining data for the research?
Consider the privacy standards in informatics systems as they relate to the need for aggregate data to conduct effective population health studies.
Post by Day 3
An explanation of which of the seven guiding principles for ethical research as outlined by the NIH have been violated in this scenario. Be specific and provide examples.Using the Pb.D. framework principles outlined in your course text (Joshi et al., 2019, pp. 338–339), propose two ethical strategies that Dr. Marks could have employed to achieve his goals of obtaining pilot data and ensuring the privacy and security of health system patients. Be specific and provide examples.
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