Families of children with special healthcare needs can face substantial emotional and financial burdens.
Families of children with special healthcare needs can face substantial emotional and financial burdens. Initially, parents can feel guilt, anger, depression, and denial. Parents or caregivers can have difficulty getting the appropriate services for their child, including medical care as well as community- and school-based services. Insurance coverage is often inadequate, particularly for children with mental health conditions, and the healthcare costs can be overwhelming. Because parents need to invest considerable amounts of time to plan and coordinate care for their child, they may have to reduce their hours or quit their job entirely. Siblings of children with special healthcare needs can feel angry or resentful because they receive less parental attention and because their family may be socially isolated and unable to participate in typical activities.Imagine you work for a local public health agency and have been asked to develop a program to improve the quality of life for families of children with special healthcare needs. What would that program look like? Who would be eligible (e.g., would it be income-based)? What type of support would you provide? How would you let families know the program is available?
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