There are numerous questions that I pose in the PPT. Questions about the impact of a disability, ?marriage, parenting while ha
There are numerous questions that I pose in the PPT. Questions about the impact of a disability, marriage, parenting while having a disability, and more. Did this week videos help answer some of those questions for you? What questions do you still have?
Family and Disability
COUN 2020
Major Components of Family Unit
Affect
How the family deals with feelings – moods, acknowledgement of feelings
Communication
How the family talks and communicates ideas and concepts – clearness, respectfulness, and patterns of interactions with others)
Structure/Organization
Hierarchy
Boundaries
Flexibility
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Age of Onset Plays Critical Role
Infancy
Toddler
Youth
Young Adult
Adult
Old Age
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Disability disrupts the homeostatic balance of the family unit
Changes in
Schedules
Duties
Plans
Roles
Subjective Burden
Powerful grieving process as well as intense emotions. The personal suffering experienced by family members in response to their relative’s illness.
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With or without support, the family must progress through essentially the same stages of adjustment as the person who is disabled.
SHOCK, PAIN, ANXIETY, LIFE HAS ALTERED, MUST DEAL WITH PEOPLE’S PERCEPTION, THEIR REACTION, GUILT, RELATIONSHIPS CHANGE
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The Whole Family
Vash and Crewe contend that “ although only one member of the family “owns” the disability, all family members are affected and, to some extent, handicapped by it”
Characteristics of Healthy Family
Commitment
Togetherness
Appreciation and admiration of an individual
Communication
Spiritual well-being
Coping with crisis/stress
What else?
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Emotional stability is the prime requisite for coping with any catastrophic change, in order to neutralize adverse reactions and facilitate the adjustment process. A loving nature, the ability to accept “what is” and proceed from there, and belief in one’s own power to influence the future are crucial aspects of the emotional armamentarium needed
The ability to grasp the medical and other facts of the situation, to foresee and prepare for problems that may arise in the future, and to creatively devise and implement solutions to them, plus a working knowledge of the outer resources that exist in the community are exceedingly important intellectual resources to draw upon, both in times of crisis and later when the crisis stage has passed
Such as assertiveness, persuasiveness, diplomacy, and
emotional supportiveness
Enmeshment
Disengagement
Adaptaion
Family and Disability
Guilt
Coalition/subsystem
Boundaries
Resources
E
8
Marriage
Marriage’s established after disablement have a statistically higher high chances of non-divorce than marriages that occur before disabling event happens.
What could explain this?
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Child Rearing
Should individuals with disabilities attempt to raise children?
How can discipline be maintained?
Can a disabled parent serve as an appropriate role model?
Parents with intellectual disabilities
There is a stigma against individuals with a disability raising a child. The stigma raises in part from the concept of parentification. Parentification is when a child takes on inappropriate care giving duties
Parentification may happen, but it’s usually the result of the lack of resources and support
“Have ’em, love ’em, and leave ’em alone!”
Buck and Hohmann’s findings (1983) that the children of reasonably well-adjusted disabled parents differ from children of nondisabled parents mainly in that they are more affectionate and appreciative toward their parents and more responsible or mature than the typical child of the same age
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